Jul14 Alzheimer's Association

Page 14 — Healthy Cells Magazine — Peoria — July 2014
alzheimer’s association
S
ince its debut during the Alzheimer's Association International
Conference 2010, Alzheimer's Association TrialMatchTM has
matched more than 3,000 people to Alzheimer’s clinical tri-
als based on their diagnosis, preferences, and location. The service
provides comprehensive clinical trial information and an individualized
matching service for people with Alzheimer’s disease or related demen-
tias, their caregivers, family members, and doctors. The service can be
accessed by website: www.alz.org/trialmatch; or phone: 800-272-3900.
For people with Alzheimer’s and their caregivers, clinical trials pres-
ent an opportunity to play a more active role in their own treatment,
contribute to scientific discovery, and benefit future generations.
“One of the greatest obstacles to developing the next generation
of Alzheimer’s treatments is recruiting and retaining trial participants,”
said Nikki Vulgaris-Rodriguez, executive director for the Central Illinois
Chapter. “Alzheimer's Association TrialMatch was launched in 2010
as a user-friendly and individualized guide to Alzheimer’s clinical trials.
If we can fill the trials faster, we will get answers faster and get closer
to finding better treatments and a cure for Alzheimer’s.”
There are as many as 5.4 million Americans living with the disease and
every 67 seconds someone in America develops Alzheimer’s disease,
according to the Alzheimer’s Association’s 2013 Alzheimer’s Disease
Trialmatch
TM

Connects People With
Alzheimer’s Clinical Trials Nationwide
Submitted by the Alzheimer’s Association, Central Illinois Chapter
Facts and Figures. The annual total number of new cases of Alzheimer’s
and other dementias is projected to be almost 16 million by 2050.
About Alzheimer’s Association TrialMatch
Alzheimer’s Association TrialMatch is easy to use — with web and
phone support, specially trained staff, and tools developed with input
from people with Alzheimer’s. Since the service launched in July 2010,
more than 13,000 individuals have registered to search for Alzheimer’s
clinical trials. Currently, Alzheimer's Association TrialMatch lists 131
research studies with 545 local trial sites nationwide.
The strength of this service is its comprehensive, constantly
updated database of Alzheimer’s, mild cognitive impairment, and other
dementia trials taking place across the United States. Specialists at
the Alzheimer’s Association’s national helpline — available 24-hours
a day — assist in the process of matching individuals to clinical trials
for which they are eligible based on study criteria, diagnosis, treatment
history, and location. They answer questions about the trial process
and connect individuals with trial sites based on their unique profile.
Patients and caregivers are encouraged to share their trial matches
with their healthcare professionals to help decide whether a clinical trial
is appropriate.
July 2014 — Peoria — Healthy Cells Magazine — Page 15
alzheimer’s association
How to Use Alzheimer's Association TrialMatch
Step 1: Access TrialMatch online at www.alz.org/TrialMatch or by
calling 800-272-3900.
Step 2: Complete a brief questionnaire, either online or over the
phone, to create a profile.
Step 3: Based on specified eligibility criteria (i.e., diagnosis, treatment
history, location), the Alzheimer’s Association will match your
unique profile to its clinical trial database.
Step 4: With your permission, an Alzheimer’s Association specialist
will contact you to provide unbiased trial result options and
trial site contact information. Specialists will not recommend
any particular trial, but will help you identify trials that match
your specific eligibility and criteria. Alzheimer’s Association
TrialMatch specialists are available from 7 a.m. to 7 p.m. CT,
Monday through Friday.
The technology and platform for Alzheimer’s Association Trial-
Match is provided by EmergingMed.
The Alzheimer’s Association is the world’s leading voluntary health
organization in Alzheimer care, support, and research. Our mission
is to eliminate Alzheimer’s disease through the advancement of
research, to provide and enhance care and support for all affected,
and to reduce the risk of dementia through the promotion of brain
health. Our vision is a world without Alzheimer’s. Visit www.alz.org or
call 800-272-3900.
Photo credit: AlexRaths/Thinkstock
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